In a moment when you are not having these episodes, take whoever needs to know aside and explain to them what it is.

For example, with your SO, talk to them about it when you both have free time and you aren't having this issue.

Start by mentioning that you know they want to help and aren't sure how, then explain (if you haven't already) what this condition is. Then, or if you have already, set out a list of what exactly happens (to the best of your ability) and what, if anything, they can do to make sure this doesn't turn dangerous (like hitting your head on something, if that's possible).

Is there a chance that something happens and these attacks get worse at some point? If there is, explain what the signs you do need medical assistance are if you know them. If you don't know them or aren't sure if one of these could end with you needing a trip to the ER, consider asking your doctor.

Make sure that your tone is (relatively) relaxed while discussing this, so that you show that you know these aren't as big a deal as they may seem.

Also consider a discussion about stress itself. Someone, especially your SO, might have a few ideas to try to help remove some stress from you, or might be able to see when you're getting very stressed and try to take steps to help if possible.

Then, perhaps work out some signal you might be able to give at the start of one of these attacks, if you have just enough time to. For example, give a thumbs up or something similar to signal that you'll be fine through your episode.

If you can't make a signal like this at the very start of an episode, it may be impossible to communicate in any way during the episode. However, you can, after your discussion, just inform whomever is present and knows that an episode is about to start for the times when you do feel them coming on. This will at least give them some warning as to what is about to happen.

In a moment when you are not having these episodes, take whoever needs to know aside and explain to them what it is.

For example, with your SO, talk to them about it when you both have free time and you aren't having this issue.

Start by mentioning that you know they want to help and aren't sure how, then explain (if you haven't already) what this condition is. Then, or if you have already, set out a list of what exactly happens (to the best of your ability) and what, if anything, they can do to make sure this doesn't turn dangerous (like hitting your head on something, if that's possible).

Is there a chance that something happens and these attacks get worse at some point? If there is, explain what the signs you do need medical assistance are if you know them. If you don't know them or aren't sure if one of these could end with you needing a trip to the ER, consider asking your doctor.

Make sure that your tone is (relatively) relaxed while discussing this, so that you show that you know these aren't as big a deal as they may seem.

Also consider a discussion about stress itself. Someone, especially your SO, might have a few ideas to try to help remove some stress from you, or might be able to see when you're getting very stressed and try to take steps to help if possible.

Then, perhaps work out some signal you might be able to give at the start of one of these attacks, if you have just enough time to. For example, give a thumbs up or something similar to signal that you'll be fine through your episode.

If you can't make a signal like this at the very start of an episode, it may be impossible to communicate in any way during the episode. However, you can, after your discussion, just inform whomever is present and knows that an episode is about to start for the times when you do feel them coming on. This will at least give them some warning as to what is about to happen. You can also, as you have indicated you regain movement in your thumbs/hands first, give a thumbs up at the end of the episode to indicate you'll be just fine.